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Net profits are donated to scientific research and patient support organizations.

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Our goal is to connect science with youth culture to inspire future generations of science advocates. The more people who are behind science, the better we are at facing and overcoming challenges in our health, environment, and future.

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HOW WE DONATE

Our net profits are donated to organizations that we are involved with. Customers also have the option to choose any nonprofit organization including those not listed below to donate to with their purchase.

 

See donations

WHO WE DONATE

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NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

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InvisiYouth Charity is an organization that helps teens and young adults around the world with various chronic illnesses and disabilities gain the right lifestyle programs, empowerment tools and fun resources to keep living life with any health struggles. With InvisiYouth, older youth are motivated in all the non-medical aspects of life with any illness, visible or invisible, and have access to resources and platforms so they can have joy, success, and thrive in their diverse lives.

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The Ehlers-Danlos Society is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes (EDS), hypermobility spectrum disorders (HSD), and related conditions. The Ehlers-Danlos Society is proudly working to provide global learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population: Giving HOPE to all those whose lives are affected by EDS and HSD.

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Beacon is a UK-based non-profit organisation that is building a united rare disease community with patient groups at its heart. Beacon envisions a world in which no one faces their rare journey alone. The charity firmly believes that patient groups have the power, knowledge and determination to change the future of rare disease. Beacon upskills these groups through trainings, guided programmes, community projects and research initiatives to help them make a maximum impact when engaging in research and advocacy projects with the wider rare community. Beacon is a guiding light for all those living with a rare disease.

Cure SMA leads the way to a world without spinal muscular atrophy (SMA), the number one genetic cause of death for infants. Cure SMA funds and directs comprehensive research that drives breakthroughs in treatment and care, and we provide individuals with SMA and their families the support they need for today. A few programs that we’ve put into action for the SMA community include our Summits of Strength, virtual support series, and community support packages. Their Research, Clinical Care, Family Support and Advocacy teams actively work with key partners, including individuals with SMA, family advocates and pharmaceutical companies to advance early detection and treatment of SMA, fund new research and treatments, and provide families with the support, care, and equipment they need.

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mission

Nice Genes is a streetwear brand that connects science with youth culture to inspire future generations of science advocates. Our goal is to support the nationwide community that fosters the importance of science and provides for the unmet medical needs of rare disease patients. The more people who are behind science, the better we are at facing and overcoming challenges in our health, environment, and future.

charity

Nice Genes is dedicated to making a positive impact for all by donating all of our profits to nonprofit organizations in need. All merchandise and apparel are made through a print-on-demand service which saves your donations from financial risk. Customers have the option of choosing any nonprofit organization to donate to. If section is not filled, donations will be made to National Organization for Rare Disorders (NORD)InvisiYouth, Rare Beacon, The Ehlers-Danlos Society, and Cure SMA. We're able to donate 100% of profits because we don't require inventory or warehousing. Overhead cost only includes maintaining the website (Wix Premium $30/mo). $1,700 was donated as of April 2022. For transparency, see complete list of my donation receipts and sales overview.

future goals

We eventually want to use the profits for:

  • Research Grants

  • Scholarships

rare disease facts

  • US defines a rare disease as any disease that affects less than 200,000 Americans.

  • All together, they affect around 30M Americans and about 400M people worldwide.

  • There are more than 7,000 rare diseases. 5% have treatments - even fewer have a cure.

  • Most rare diseases are chronic and life-threatening - 30% of patients will not live past 5 years old.

support rare disease organizations

about me 

My name is Jason Hong and I'm currently a pharmacy student in California. I started Nice Genes in December 2020 with the idea of selling t-shirts/merchandise as a small business to raise awareness and money for rare disease research. After my anticipated completion in pharmacy school in May 2022, I'll be starting my postdoctoral fellowship at Genentech as a clinical scientist to develop clinical trials for new treatments. I hope to create an impact for diseases with unmet needs through my professional career and Nice Genes. Connect with me on LinkedIn!

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